So I almost died.
I realize that’s a tough way to start this story but it is what it is and the fact that I’m writing (and maybe you’re reading) this blog means I survived. Very few people know what has happened because we (my great kid, my sister and myself) have kept it very quiet. I’m sharing it now because what has happened, what I’ve lost, what I’ve gained, what I’ve learned has changed me forever. But what a long, strange trip it’s been.
I hadn’t been feeling well for a few days at the beginning of May. Very fatigued, very weak, feverish and having trouble breathing properly. Took a Covid test and it was negative. My sister, God bless her, called our mutual primary care physician and begged her office to let us come in right away. And she did and off we went. I could barely walk into the office but I do recall that the waiting room was filled with people and they whisked me past everyone right into an examining room. The doctor came in and put me on oxygen, took my vitals and told my sister to drive immediately – and she stressed immediately – across the street to the emergency room. And off we went, me still hooked up to oxygen. We arrived and my sister got someone from the emergency room to help me into a wheelchair, along with my new best friend, the oxygen tank, and off we went.
I know it was about 4:00 in the afternoon on May 5 when we arrived and that it was my darling Mom’s birthday. I remember getting into the wheelchair. I remember being pushed through the doors of the emergency room. I remember being wheeled down the hall. And then my memory stops, like a screen going black at a movie theater.
The next time I woke up was either May 16 or 17. I didn’t know where I was or what had happened. There were tubes attached to me everywhere. I couldn’t speak, I could barely see, I couldn’t move. What woke me up was the sound of my great kid speaking to me, as I’m sure he had been doing for the past 10 or 11 days, trying to get me wake up. I heard “Mommy, wake up. Mommy, squeeze my hand. Mommy, come back to me”. And I opened my eyes and there he was, his beautiful tear-streaked face inches from mine. I don’t think I stayed awake long but I had woken up and they and my amazing medical team were cheered by that.
The next day I woke up and saw my sister sitting next to me. I knew that I recognized her but I wasn’t sure it was her and I couldn’t speak to ask her who she was. She held my hand and told me I’d be ok. The following day my son, who had literally walked off his job in Las Vegas when he got the call from my sister on May 5, had to go back to Vegas for a few days. And again I woke up to the sound of his voice telling me had to leave for a while but he’d be back soon.
When they finally started pulling some of the tubes out of me, one of them was a breathing tube and I couldn’t really talk or express myself. But I was confused because I didn’t understand why my Mom wasn’t there at the hospital. I tried to ask my sister but couldn’t speak and I tried to write a note just saying “Mom?” but all I could do was draw squiggles. It wasn’t until a day or so later when I could talk a little that I asked her why my Mom wasn’t there and she had to remind me that my Mom had died the previous June. My heart was broken all over again.
So what I ultimately learned was that I was transferred from the original emergency room to the great St. Mark’s Hospital in Salt Lake City, the hospital that had saved my mother’s life several years before. I was told I got there via ambulance transfer. I have to believe them because I don’t know how I arrived. I was placed in the ICU where I was diagnosed with a severe infection that was extremely resistant to antibiotics. I also had a significant fluid buildup in my body and required a breathing tube and dialysis and all sorts of other treatments that I don’t recall.
I ultimately got well enough after the ICU stay to transfer to the PCU floor of the hospital for about 10 additional days which were spent mostly sleeping and being checked by all kinds of doctors, specialists, counselors and clergy what seemed constantly. And after those 10 days, I transitioned to the Rehab Center in the hospital. At that point I could not sit up in bed, get out of bed, turn over in bed. But the rehab specialists and my 2 great doctors assured me that they would get me out of bed, walking again (albeit slowly), learning how to take a shower on my own, learning how to lift myself up out of a chair. That they would push me as much as I could tolerate it and told me to believe in them and myself and that progress, while slow and incremental, would still happen and to just be patient. I cried a lot, I didn’t make much progress in the beginning but they were right. I wasn’t 100% when I was discharged 18 days later but I was able to go home and continue my rehab journey through in-home occupational and physical therapy and now I may not be at 100% but I’m hovering around 80% of a full recovery. I don’t know whether I’ll ever get to 100% but, considering the alternative, I’m OK with 80%.
It seems each day I learned things I didn’t know. The nights my son got calls in the middle of the night that he dreaded answering because he was afraid he’d got the ultimate bad news. That my son called a priest and had him administer the Sacrament of the Sick to me – even though I was not conscious – because he knew that I would want that. The agony he and my sister suffered seeing me hooked up to so many machines, unable to communicate and being told on more than one occasion that I might not make it. I don’t know how it all happened; I don’t know how I survived. But I do have a theory.
Before I “officially” woke up, I had what I know was a real experience although it couldn’t possibly have been. I opened my eyes one night and I was sitting in some kind of hospital reclining chair and I was facing a looking glass. A light green mist surrounded me and made me feel very calm and although I could not see anyone I knew my parents and my sister and my great kid were there with me. And they were all telling me without words that it was not my time to leave this world and that I needed to fight to stay there. I only recently shared this with my sister and my son and they assure me it could not and did not happen but maybe it was a transitional moment, a bridge between life and death, a door that could have opened either way. I am enormously blessed that the door I chose led me back to those I love and who put their lives on hold to be there with me and support me and be my advocate with the doctors. They saved my life as much as Dr. Prater (my PCP who sent me to the emergency room) and the doctors in the ICU and the PCU and the Rehab Center did.
So what have I learned from this? First, pay attention to what your body tells you and act upon it. If I hadn’t gone to the doctor that day, she tells me I had probably less than 48 hours to live. I’ve learned to let go of petty grievances, trying to reason with people on social media, and embracing the circle of people who have surrounded me with so many prayers and so much love. I have a box filled with the cards my high school classmates sent me. I have Mass cards from friends saying that they’d had a Mass said for me to get better. I have a beautiful orchid plant from a friend who worried about me and wanted to see me at the hospital and who ultimately did and cheered me enormously. I have a birthday card signed by everyone in the Rehab Center (because that’s where I gratefully celebrated being granted another birthday) and the memory of the Baskin Robbins ice cream cake my great kid brought me to celebrate.
Life is truly short and it’s not until you face your mortality head on that you realize that however long any of us have in this world, we can use that time to make it a better place and to make people smile. I try to compliment every person I see or thank them for what they’ve done. I’ve doubled down on my prayers of gratitude. I talk to my Mom and Dad as if they’re still here and thank them for telling me it wasn’t my time. My relationships with my sister and my great kid have become so much more powerful and I am blessed that my great kid wants to take care of me. He is following the path that our family has always taken – my Mom and Dad took care of her father and her brother after her mother died; when my paternal grandmother was not well, we all moved in with her to keep her safe; when my Mom’s brother, my beloved Uncle Buddy, was dying, my Dad moved in with my Uncle and his son and daughter-in-law to take on the care and comfort of Uncle Buddy and when my Uncle died it was one of the few times I saw my Dad truly weep with deep grief. When my Mom couldn’t live on her own any more, we moved here to Salt Lake City together so I could watch out for her. And now my sister is taking care of me in her home until I can be with my great kid in the new home he’s planning for us.
I’m a lucky woman and I don’t know how I got so lucky but I do believe that not only medicine and great doctors saved me but the prayers I received, the calls, the notes, the visits and being blessed with the 2 best caregiver advocates I could possibly have – Brendan and Barbara – saved my life. And I’ve vowed to be a light in the world and try to be there for others as others were there for me. I want to pay forward my blessings and I promise you I will. If I can help you, if I can be a shoulder for you to cry on, if I can offer you a hand when you need one to hold or a hug when you feel broken, please reach out to me. We can all be each other’s support systems and advocates and it’s never too late to start. I’m living proof of that.